Rare and Complex Urology

Part I: Introductory chapters

1. Introduction: Rare urology, ERN eUROGEN and knowledge exchange

2. The European Association of Urology (EAU) and ERN eUROGEN

Part II: Overview chapters

3. ERN eUROGEN: Impact and innovations for rare and complex urology

4. The patient view on the ERN programme: Share, care, cure, and pathways

5. Cross-ERN actions and collaborations by ERN eUROGEN

6. Development of the ERN eUROGEN registry

7. Development of ERN eUROGEN clinical practice guidelines (CPGs) and clinical decision support tools (CDSTs)

Part III: Clinical chapters

Section A
Workstream 1: Rare congenital uro-recto-genital anomalies

8. Expertise Area 1.1: Complex genital reconstructions in patients with differences of sex development

9. Expertise Area 1.2: Bladder exstrophy/epispadias

10. Expertise Area 1.3: Rare urological stones and kidney diseases

11. Expertise Area 1.4: Nonsyndromic urogenital tract malformation (neurogenic bladder and spina
bifida)

12. Expertise Area 1.5: Posterior urethral valves

13. Expertise Area 1.6: Proximal hypospadias

14. Expertise Area 1.7: Ano-uro-rectal malformations

Section B
Workstream 2: Functional urogenital conditions requiring highly specialised surgery

15. Expertise Area 2.1: Complicated and complex pelvic floor disorders

16. Expertise Area 2.2: Rare diseases and conditions affecting the female urethra

17. Expertise Area 2.3: Urethral reconstruction in rare diseases and conditions

18. Expertise Area 2.4: Rare retroperitoneal diseases and conditions

19. Expertise Area 2.5: Bladder pain syndrome/Interstitial cystitis (BPS/IC)

20. Expertise Area 2.6: Adult urogenital reconstructive surgery

21. Expertise Area 2.7: Surgery for transgender patients

Section C
Workstream 3: Rare Urogenital Tumours

22. Expertise Area 3.1: Penile cancer

23. Expertise Area 3.2: Testicular cancer

24. Expertise Area 3.3: Adrenal cancer

25. Expertise Area 3.4: Abdominopelvic sarcoma

26. Expertise Area 3.5: Rare renal tumour surgery

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• Ciências da vida: temas gerais

Urology; Urorectogenital; Anorectal anomaly; Rare; Complex condition; ERN eUROGEN; European Reference Network; bladder; stone disease; kidney disease; malformations; pelvic floor disorders; the female urethra; reconstruction; surgery; rare cancer; rare tumors